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Thank you for taking the time to participate in the Bonnie J. Addario Lung Cancer Foundation (ALCF)'s pan-cancer ROS1 survey.
ROS1 fusions are unfortunately an understudied molecular subset of most cancers. ALCF would like to understand the genesis of these fusions, response to treatment, development of therapy resistance, etc., and this survey is a first step in that direction.
Through this survey, we would like to collect as much data as possible regarding possible causes of these rearrangements- exposure, family, diet & exercise, reproductive health history, etc. We do not know what caused your cancer and therefore we are trying to obtain the most comprehensive information possible to understand what may contribute. The expectation is that, over time, with enough responses, we can better understand what factors may influence the development of these gene rearrangements, and their response to therapy.
All question responses are optional, however, we encourage that you fill out as many as possible to help us understand your disease better. All of your responses will remain confidential. The survey automatically saves your responses a few seconds after you enter them, so you can choose to come back to it after a gap of time if you need to. Only caveat being you will have to continue to take it on the same computer (preferably leave the tab open).
We have divided the survey into 10 segments and you can track your progress on the top of each page through the progress bar.
You can reach Dr. Guneet Walia at ALCF at firstname.lastname@example.org should you have any questions.
Hope you have as much fun filling out these responses, as we did in creating this survey! Thank you so much for your time!
Name (First and Last)
Full Mailing Address
Did you read the electronic consent form?
Would you like a copy of the aggregated survey results when they are available for release?
What is your gender?
How would you describe yourself?
Choose one or more from the following groups. Please use text boxes to describe more information about your ancestry e.g. Eastern European.
Black or African American
American Indian or Alaska Native
Native Hawaiian or Pacific Islander
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